What’s in a name? Quite a lot actually. Back when I first started the blog I thought long and hard about what to call it. Now, I have to think long and hard again about another new name – do I want to call my new label borderline personality disorder, or emotionally unstable personality disorder? I mentioned before that I’ve so far been referring to it as ‘this whole borderline thing’, and with Therapist we’ve been calling it ‘what you’ve/I’ve got’ but I need to pick one and settle with it, if for no other reason than it’ll make referring to it in sessions that bit easier. Also I need to take ownership, and if even applying the name to myself defeats me, then I’ve a long, long way to go in terms of acceptance.

To be honest, I think I prefer borderline, although that’s a term that’s fallen out of favour and I don’t think it’s used in the DSM anymore. While it sounds scary, it’s also kind of vague – do the vast majority actually know what borderline means? I think (and I could be wrong) that the name originally came about because when the disorder was first recognised, people were thought to be on the borderline between neurosis and psychosis, hence borderline personality disorder. Since then, (and I’m still learning so don’t quote me on this) it has been established that the disorder is far more complex than that, and as emotional instability is a key factor in diagnosis, a new name was born. I’m less enamoured of this one. First off, it’s a mouthful. Also, it pretty much says what it is. I don’t like to think of myself as emotionally unstable. I wouldn’t like to say to someone that I’m emotionally unstable. I feel like it carries a whack more stigma than depression, that by it’s very name it implies that I’m unpredictable and reactive. I feel like it’s a name that would scare people a whole lot more, make people far more wary of me. But in reality, does it? Or is that my own fear coming through? Because here’s the thing. I am unpredictable and reactive. I can be incredibly emotional, and my reactions can be out of all proportion to a particular event. Thankfully (for everyone else anyway) my more massive reactions tend to turn inwards and affect me more than anyone else, and right now, things are starting to stabilise. The extreme spikes in mood of two months ago have levelled out a lot, and I’m starting to recognise when my reactions may be disproportionate to what has triggered them.

Image credit: Dirk’s big bunny blog

I saw Therapist yesterday, and we spent quite a bit of time trying to tease this out. She had an analogy for me that made a lot of sense, I’ll try and explain it. Take meningitis. There are a lot of different symptoms, and not everyone gets every symptom. Likewise, one symptom alone doesn’t lead to a diagnosis of meningitis, for example, while a rash is a typical symptom, a rash alone is not meningitis. However, a rash and a severe aversion to bright light might be more serious. Does that make sense? What she was trying to get me to understand (and if you can follow this she succeeded) is that I need to look at my moods and reactions and see if they’re in proportion to what’s going on (just a rash) or else extreme (rash and bright lights). When I start to be able to make that distinction, then I can start to take more control of it, by recognising what’s going on. How that control is going to come about though is a whole other ball game.

By the end of yesterday’s session we had agreed on emotionally unstable personality disorder, or EUPD which is slightly easier to say. It’s still a mouthful. It’s still a huge label. Therapist keeps telling me how much work I have ahead of me, that it’s a cruel diagnosis, but that we’ve a lot done already. So I’ll keep on keeping on. I’m still not sure I can actually say out loud ‘I have emotionally unstable personality disorder’. It sounds too big, too scary, unreal somehow. But I can write it. And I’m starting to see the difference between just a rash and something more. I know I’ve a long way to go, but I also know I’ll have a lot of help on the way. Once I remember that, it doesn’t seem so threatening.

This article has 7 Comments

  1. Two things come to mind…

    First, I love how you dissect these things, and really try to sort through the pieces of it. Before I started blogging I thought I was the only one who was having such a tough time wading through it, that others got the diagnosis, understood it, and immediately set about fixing it. Whereas I was stuck int the minutae of understanding it. Your posts like these remind me that I'm not alone in this kind of analysis – for better or for worse! 🙂

    Secondly, do you remember that awful period several weeks ago when you were just in horrible shape? Your whole tone of tackling this new diagnosis is thousands of miles away from those posts where you felt so hopeless and despairing. So while I wish that you didn't have a new diagnosis to contend with, I'm grateful for you that you received it at a time when you're feeling much better and can process it in a healthier way.

    1. How ironic that after me writing the above, and then you going on to comment about how I'm processing it in a healthy way that I decide to go and have a complete melt down about it last night! I stopped analysing and just thought about the size of it all, how far I have to go. Maybe it wasn't the healthiest thing to do, but I think I needed to get it out of my system. I'm feeling better today, a little more accepting of things. I've no doubt that will change again, and probably soon. But briefly, it was useful to step back from the minutiae, if only to remind myself that I really do need to think about and be aware of the smaller parts, because they're what will help me change the big picture.
      That was a bit of a stream of consciousness, sorry, hope it makes sense!

    2. Yep, that makes perfect sense. I think a melt down is completely reasonable, frankly. You've had so much to wrap your mind around.

      You've made a couple of references to having a long road ahead with this diagnosis. Has your therapist walked you through what that looks like? And what the end goal looks like?

    3. Mostly I think it's going to involve a lot of looking at my reactions to situations as they arise, trying to figure out whether they're in proportion to particular event and then figuring out ways to cope with the intense and disproportionate reactions as they arise. I'm also starting a DBT group today, it's a form of therapy that works specifically for people who have difficulty regulating their emotions – it's been described as like CBT with mindfulness. I'll be doing that for 6 weeks alongside my regular sessoins with therapist.
      End goal……….sanity??!

  2. I prefer Borderline. I have found that I can hide from the general public with that label; no one knows what it is. It gives me a chance to explain for myself how I am. With emotionally unstable I feel it shows too much and makes it way more scary. "That person is emotionally unstable! Run away!" That kind of thing comes to mind.

    1. Yup, that makes a lot of sense. I think I've been coming down more in favour of that as well, although technically it's the equivalent of calling PTSD shellshock. But you're right, it's much more vague. That said, it does also sound really scary so…………jury's still out for me!

  3. Interesting and in-depth, Ive been diagnosed by a psychiatrist with an emotionally unstable personality disorder. I was actually relieved in a way and said bloody hell I knew I wasn’t right the way I reacted to some situations by getting really tearful, spending time on my own and dealing with normal everyday events gone wrong, but to me they are unbearable if something goes wrong, I cant stand it. I went to specsavers and they fobbed me off with stuff, but I dealt with it and got what I wanted, but then it sets me back for days, not even thinking about it at all, that’s not the problem, I don’t know what the problem is but I keep losing jobs. I think, maybe, us people with EBPD (emotional borderline personality disorder) have been through a lot of shit and we stand up to people, and they cant handle it because they have weakness themselves, and are ungratefully amazed, but cant quite fathom it out, why we are so unique. We are, we’ve earnt it, felt it, lived it, seen it through, of course we’re emotionally unstable, so what. makes me quite vulnerable. its causes a bit of head traffic sometimes, but living on my own makes it easier.

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